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Cell Biology JoVE (Open Access) Citable · DOI

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

DOI: 10.3791/56220-v
What you'll learn
  • ✓ Design and facilitate community-engaged research prioritization sessions with affected populations
  • ✓ Implement structured protocols to elicit and synthesize research questions from stakeholder groups
  • ✓ Analyze and rank research priorities to inform funder and researcher agendas
Protocol

Biopharma Insights This manuscript describes the Research Prioritization by Affected Communities (RPAC) protocol and findings from its use with women at risk for preterm birth. Using the protocol, women identified and prioritized their unanswered questions about pregnancy, birth and neonatal care aimed at influencing research priority setting by funders and researchers.

Difficulty
intermediate
Total time
~4-6 hours per session group (2 sessions of 2-3 hours each)

Steps

1
Generate research questions from participant input

Facilitate Session 1 to elicit unanswered questions from women at high risk for preterm birth regarding pregnancy, birth, and neonatal care. Document and organize participant-generated research questions.

▶ 01:27
2
Prioritize research questions and topics collaboratively

Conduct Session 2 to have participants rank and prioritize the research questions and topics identified in Session 1. Use structured voting or consensus-building methods to determine priority research areas.

▶ 04:59
3
Synthesize and present priority research findings

Analyze prioritized research questions and topics to generate representative results. Present the community-identified priorities for dissemination to research funders and investigators.

▶ 12:10
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